Welcome to my site. I am a memoirist, blogger, editor and essayist. I write about disability rights, health care, education, social justice, family, loss, and travel. Every once in a while, I find connections across those topics.
My memoir, MY DAUGHTER DIDN’T WANT ME TO USE HER NAME, is about my daughter who was trapped in a body that didn’t work and her mother who didn’t know what to do with her.
I was a parent and caregiver for over twenty-five years. I have no medical background and am squeamish around body fluids. I came to this position unqualified and uncredentialed. I lack credentials and am entirely self-taught. I instinctively (and sometimes defensively) question everything I hear from doctors and other medical professionals.
For the past seven years, I have managed a college level educational and enrichment program for one student. I had no prior experience in educating anyone other than myself. I still have a lot to learn.
I’ve attended Aspen Words Workshop and Squaw Valley Writers Workshop. My work has been published in Hippocampus, Brain, Child and The Big Roundtable. Early chapters of my memoir have appeared in A CUP OF COMFORT FOR PARENTS OF CHILDREN WITH SPECIAL NEEDS and in Huffington Post. My reading for San Francisco’s Listen to Your Mother program is now on YouTube.
I am a believer in magic and miracles, whichever is most appropriate. I live with my husband, Gary, and our incorrigible dog, Rico, near San Francisco, California.